A definition of Juvenile Scleroderma in simple, easy to understand language


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BJ's Story

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I AM...
By BJ Gaither, 13 years old

I am unique and curious.
I wonder about what's going to happen when I die.
I hear everything.
I see the future.
I want to explore.
I am unique and curious.
I pretend to be a drummer.
I feel sad.
I touch peoples lives.
I worry about my family everyday.
I cry when my cousin's Tourettes gets worse every day.
I am unique and curious.
I understand when somebody makes fun of you and you get mad.
I say things to make you feel better.
I dream about weird things.
I try new things.
I hope my disease goes away.
I am unique and curious.

For more information on Juvenile Scleroderma, contact:

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731

Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)

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